Education

Members of the IRCPSS are active in communicating across multiple disciplines about CPSS with a view to decrease diagnostic delay.

Past events

Meetings

2022: “Second meeting of experts of the IRCPSS: Taking CPSS to the next level”

Hôpitaux Universitaires de Genève
Geneva
Switzerland

2019: “First Meeting of experts of the IRCPSS”

Hôpital Bicêtre
Paris-Saclay University

Le Kremlin-Bicêtre
France

Partnership

The European Joint Programme Rare Diseases supported the IRCPSS via a Networking Support Scheme for the Meeting of Experts, held in Geneva, Switzerland, 1-2 July 2022.

Webinars

ESPGHAN webinar 2021

« Congenital Portosystemic shunts: the great masqueraders. »

Link

ERN Rare-liver on-demand Webinar

« Congenital Porto-systemic shunts: a rare condition that can present during adulthood »

Link

Clinical Case Conference (exclusively opened to health care professionals)

General Public communication

Video (french with subtitles) – Filfoie rare disease

Symposium 2022