Members of the IRCPSS are active in communicating across multiple disciplines about CPSS with a view to decrease diagnostic delay.
2022: “Second meeting of experts of the IRCPSS: Taking CPSS to the next level”
Hôpitaux Universitaires de Genève
2019: “First Meeting of experts of the IRCPSS”
The European Joint Programme Rare Diseases supported the IRCPSS via a Networking Support Scheme for the Meeting of Experts, held in Geneva, Switzerland, 1-2 July 2022.
Clinical Case Conference (exclusively opened to health care professionals)
- Presentation of two cases for international multidisciplinary discussion on diagnosis and management
- Contact to present a patient.